PHACE Syndrome

Awareness, particularly for rare diseases is incredibly important.  One of our younger wired sisters, Izzy, age 8 has PHACE syndrome, and until today I never heard of it, and you probably haven’t either.  Through March 29th they are promoting awareness for the disease and their community.  Consider supporting them either by showing “your phace” or making a donation.  This little […]

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Our cheerleaders

I’ve been — as my friend Tina says, experiencing ‘unexpected grace in my marriage.’  In June, we celebrate 17 years together; hubby and I.  He would probably respond with:  “17 LONG years.”    But that’s okay, because in our heart of hearts, we believe that it’s been the “thick and thin” that has kept us working at it, not giving […]

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The making of a feminist

Okay, you may think this isn’t the appropriate platform, but one thing I’ve always done with this blog; is use to share my heart.  I’ve expressed sorrow, joy, grief, statistics relating to women’s heart disease, the components of a pacemaker, the fun we have when wired sisters gather together, marital woes and religion.  And probably a few others I can’t […]

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Happy Device Birthday

I’ve been wired for almost 24 years.  On my 10th anniversary; my sister made a cake!  Since then I’ve felt it’s very important to honor and celebrate this important date.  Why?  Well, for me — it’s the date that changed my life.  It was when a device took over for my crappy electrical system.  No more fainting, no more heart […]

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SSS

I’ve been hard pressed to find a pic or infographic that shows what Sick Sinus Syndrome looks like.  There are tons of EKG strips given as examples, but to the common folk, such as myself – they make little to no sense.  A person blowing their nose had me giggling.  The definition of SSS (Sick Sinus Syndrome) is a heart […]

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Your diagnosis

On Facebook yesterday I asked: Please share your original diagnosis for receiving your pacemaker, defibrillator or heart valve/s. Also your age at time of (first) surgery. We ended up with over 70 responses!  Here are a “few” of those posts!     Ingrid Briles E.f. 14 – near death. Cardiomyopathy and congestive heart failure. 2005 – surgery on my birthday […]

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Valentine’s Day Clearance

What better way to get the word out?  A blog post!!! Our 4th WIRED4LIFE “I Love My Heart” Gathering of Women is in September!  We need all sorts of heart shaped doodads, earrings, prizes, decorations, etc. The only NO-NO is anything that says:  “(Happy) Valentine’s Day”, okay??  If you find goodies and would like to share with us; ship to:  […]

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